European Working Group on GAUCHER Disease : 7th EWGGD WORKSHOP

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Ghislaine SURREL

maladies-lysosomales-subscribe@yahoogroupes.fr

Preliminary Programme

Host Institution:

University of Cambridge & Addenbrooke’s Hospital NHS Trust

Workshop Organisers:

T.M. Cox

P.B. Deegan

J.B. Grantham

www.ewggd.co.uk

Welcome

We are delighted to welcome you to the 7th International Workshop held under the auspices of the European Working Group on Gaucher Disease.

This year the Workshop is being hosted by the team in the Department of Medicine of the University of Cambridge and Addenbrooke’s Hospital.

We are very pleased to hold the meeting in one of the most beautiful of the riverside Cambridge Colleges – St. John’s. St. John’s College was

founded in 1511 by Lady Margaret Beaufort, who was the mother of King Henry VIII.

The EWGGD Workshop provides an opportunity for delegates to hear up-to-date reports on scientific discoveries, and to discuss their

implications in relation to current practice. The meeting provides an opportunity for International Scientists and Medical Professionals to

learn from each other and for patient representatives fully to participate.

Despite its “orphan” designation, Gaucher’s disease has attracted immense competitive interest from industry. We thus also look forward to hearing

about the latest pharmaceutical initiatives directly from those involved.

We have excellent contributors who will address the many issues pertinent to the future of our patients. We trust that we will enjoy a

memorable and informative Workshop and we greatly look forward to seeing you in July.

Tim Cox Hans Aerts

Professor of Medicine Professor of Biochemistry

University of Cambridge Amsterdam Medical Centre

Vice-Chairman EWGGD Chairman EWGGD

E.W.G.G.D.

Day 1

Tuesday 18th July 2006

A.M. European Gaucher Alliance (EGA) meeting

(in camera)

13:00 – 18:00 Registration at St John’s College

18:00 Reception

18:30 Plenary Lecture:

Professor Konrad Sandhoff

Glycolipid catabolism and lysosomal membrane digestion

19:30 Dinner in St. John’s College Dining Hall

Day 2

Wednesday 19th July 2006

9:00-13:00 Free Clinical Presentations

Professor Ari Zimran

ERT trial

Professor Bryan Winchester

Iminosugars as Antidiabetics, chaperones,enzyme Inhibitors

Dr. Mario Maas

Monitoring the skeleton in Gaucher disease (Note: 3 x 30 min speakers & 30 min coffee)

Two hours for free communications

8 x 15 min. (10 min + 5 min questions)

13:00 – 14:00 Lunch

14:00 – 14:30

Dr Anthony Futerman

New Insights from the Structure of human glucocerebrosidase

14:30 – 17:00 Free Scientific Presentations

(30 minutes)

(30 minutes)Two hours for free communications

8 x 15 min (10 min + 5 min questions)

Social Programme alternatives Punting (1)

Conducted tour Visit to cathedral city of Ely

19:00 for 19:30 Dinner in Chilford Hall, Linton

Day 3

Thursday 20th July 2006

09:00 – 12:00 EGA/Gauchers Association/ECAP

12.30 – 13.00 Sir Michael Rawlins

13:00 – 14:00 Lunch

Science and Industry

14:00 – 14:30 Genzyme (30)

14:30 – 15:00 Actelion (30)

15:00 – 15:30 Tea

15:30 – 15.50 TKT Shire (20)

15.50 – 16:05 Protalix (15)

16:05 – 16:25 Healthcare at Home (20)

18:00 Plenary Lecture:

Sir John Gurdon, FRS

Nuclear re-programming in stem cells

19:30 Gala dinner, St John’s College

After dinner speaker:

Professor Sir Keith Peters, FRS PMed Sci

Day 4

Friday 21st July 2006

09:00 – 13:00 Science Session Lectures:

1.TBA

2. Professor Chabas/Vilageliu/Grinberg

Modifier genes

3. Dr. Greg Pastores

How to bring lysosomal drugs to market and beyond

3 x 30 minute talks

30 minutes coffee

2 hours Scientific Poster Session (1st & last authors to attend)

Poster questions, poster competition.

13:00 – 14:00 Lunch

14:00 – 17:00 Clinical Session

1. Dr Nadia Belmatoug

Gaucher disease: Success and limitations of current Treatments

2. Dr Markus Ries (NIH)

Treatment of Neuronopathic Gaucher disease

2 x 30 minute talks 2 hours for coffee and Clinical Poster session

Poster questions, poster competition

Social Programme alternatives

Punting (2)

Conducted tour

Visit to Cathedral City of Ely

19:00 Dinner in St. John’s College

Day 5

Saturday 22nd July 2006

09:00 – 13:00

1. Professor Hans Aerts

TBA

2. Professor Milan Elleder

Revisiting the pathology of Gaucher disease

3.

Dr. R. Schiffman

Neuronopathic Gaucher disease

Poster Prizes

Announcement of next meeting

13:00 Close and Depart

Prize committee:

Dr P.K. Mistry, Professor Hans Aerts,

Dr. Greg Pastores

Healthcare at Home - Poster Prize - Clinical

Genzyme - Poster Prize - Scientific

Actelion - Poster Prize for most original overall

Call for Abstracts

Deadline:

Monday 12th May 2006

e-mail to:

jbg20@medschl.cam.ac.uk

Faculty List

Professor Konrad Sandhoff  Universitat Bonn, Germany

Professor Ari Zimran  Shaare Zedek Medical Centre, Jerusalem

Professor Bryan Winchester  Great Ormond Street Hospital, London, UK

Dr Mario Maas Academic Medical Center, Amsterdam, Netherlands

Dr Anthony Futerman Weizmann Institute, Israel

Sir Michael Rawlins Chairman of N.I.C.E

Sir John Gurdon, FRS Institute of Developmental Biology, Cambridge, UK

Professor Sir Keith Peters, FRS Pmed Sci University of Cambridge, UK

Professor Amparo Chabas University of Barcelona, Spain

Professor Lluisa Vilageliu University of Barcelona, Spain

Professor Daniel Grinberg University of Barcelona, Spain

Dr Greg Pastores University Hospital of Manhattan, New York, USA

Dr Nadia Belmatoug Hospital Beaujon, Paris, France

Dr Markus Ries National Institute of Health, Bethesda, USA

Professor Hans Aerts University of Amsterdam, Netherlands

Professor Milan Elleder Charles University, Prague, Czech Republic

Dr Raphael Schiffman National Institute of Health, Bethesda, USA

Dr. Pramod K. Mistry Director, National Gaucher Disease Program Yale University, USA

Include

guest

Wednesday 19th July Friday 21st July

Registration Form

Title Surname:

First Name: Job Title:

Hospital:

Address for correspondence:

Postcode:

Tel: Fax:

Email:

Meeting Options

Please note that the registration fee covers all the conference dinners, lunches,

teas and coffees, and delegate packs.

Registration before 16th June including accommodation £600

❏

Registration after 16th June including accommodation £650

❏

Registration fee includes four nights accommodation

Registration before 16th June excluding accommodation £400

❏

Registration after 16th June excluding accommodation £450

❏

I will attend the welcome dinner on Tuesday18th July

I will attend the Conference dinner on Wednesday 19th July

I will attend the Gala dinner on Thursday 20th July

I will attend the Conference dinner on Friday 21st July

Please note there is single or twin bedded accommodation at St John’s College

We would like to invite all accompanying persons to participate in the

following activities.

Punting £45

Conducted Tour of Cambridge £25

Visit to Cathedral City of Ely £45

Payment Instructions

Card Holders Name

Visa/Mastercard/Amex/Maestro

Card No

Expiry Date Issue No. Security No.

Signature

Cheques should be made payable to

EWGGD

Please send completed forms to:

EWGGD 2006, 103a High Street, Stevenage, Herts SG1 3HR

Tel +44 (0) 800 917 7405 Fax +44 (0) 1438 751520

E-mail cathy@cfsevents.co.uk

The closing date for registration is 7th July 2006.

Registration

Total £

Social Activities

Total £

Grand Total

£

We would like to thank the following

sponsors for their generous support

Platinum Sponsorship

Gold Sponsorship

Bronze Sponsorship

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St John’s College, Cambridge

18th – 22nd July 2006