Shire launches Facebook page for Gaucher disease month
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Ghislaine SURREL
maladies-lysosomales-subscribe@yahoogroupes.fr
Shire plc has launched a Facebook page in honor of National Gaucher
Awareness Month – a move designed to link the name of the company, and
the name of the rare disease its drug, VPRIV, is treating. The drug sped to approval in March because the FDA urgently needed to blunt against shortages of a rival drug, Cerezyme, made by Genzyme Corp.
For every visitor to the Facebook page
who “Likes” it, Shire, which is based in the U.K. but has headquarters
for its Human Genetic Therapies division in Massachusetts, will
contribute $1 to the National Gaucher Foundation. So far, the page has
175 “Likes”, but it’s only been three days.
The question is, could an appeal to the masses ever hope to translate
into new customers for VPRIV, which treats a disease that affects only
a very small number – 1 in 50,000 – of people worldwide?
Possibly. Because the rare disease is often misdiagnosed or diagnosed
very late, greater awareness of the disease, especially in the health
care provider community, could lead to more correct diagnoses and more
potential patients. But right now, Shire doesn’t need more customers.
In June, the company established a waiting list for new patients who
want to take the drug, as they work to ramp up capacity in Lexington.
What Shire does need is to stem possible attrition from its drug as the
Genzyme shortage eases. Genzyme announced last week that U.S. Cerezyme
patients will begin to receive their full doses, and no one knows how many of the 850 patients worldwide now on VPRIV could switch back to Genzyme’s drug.
Some Gaucher patients are torn between loyalty to Genzyme – the company
that put Gaucher on the map – and appreciation for Shire, which has
stepped in to help them when Genzyme could not.
http://www.masshightech.com/stories/2010/08/30/daily66-Shire-launches-Facebook-page-for-Gaucher-disease-month.html